A Child Prodigy, a Painful Disease, and a Life-Changing Treatment | National Geographic
https://youtu.be/SpzjD1ctCyY
Caesar Sant's Facebook
https://www.facebook.com/Caesar-Sant-592087044136325/
Crowd funding for Caesar Sant's bone transplant
https://www.gofundme.com/You-can-help-Caesar-Sant
Ethical issues involved:
- Was the second daughter (Helen) a sacrificial bone marrow transplant (BMT) donor for her SCA inflicted elder brother Caesar Sant?
- Is it ethical to say a sibling is born for the purpose of donation of her body parts (eg bone marrow) for the benefit of others (eg her elder sib)?
- Why is the cost of a bone transplant in the case of SCA an expensive affair?
- What will happen to the SCA patient if the funds cannot meet the target (cost of operation)?
- Is crowd-funding a reliable source of funding for SCA treatment for SCA patients?
- Can the bone marrow transplant be done at a much cheaper cost elsewhere?
- Where are the hospitals in the world that can avail their resources to support a BMT for a chikd like Caesar?
- Can the child's nationality, his family history of SCA and his genetic inheritance of SCA be made public?
- What is the SCA child's right to fair and affordable treatment?
- What type of genetic counselling can be given to the family members? First-degree relatives? How far need counselling go - up to what level do doctors need to provide counselling?
